Diary – Explanations

Thursday 21st July 2022

I began thinking, after being asked…”how are you doing”?

My reply is always the same… “I’m doing well thank you”

I don’t really know what else to say.

Then comes …”You are looking really well” (as though I shouldn’t be)

The next question …”hows things”?

I absolutely hate trying to explain myself.

I wish they would ask hubby, so I can be reprieved from the comparison competition …

“Oh I’ve done that”

“I have to write lists too”

“Well you do better than me”

“I can’t make the things you do…Your crafts”

I sometimes feel like screaming!

Shutting myself away from the outside world of the questioning people!

I have dementia…I can still craft! It’s a miracle!

I am so tired of having to explain myself.

Would you question a person diagnosis with cancer for instance?

If the person living with cancer said they had a awful pain somewhere, would you then say you’ve had that pain too?

Probably not!

I’m not sick…I’m not in pain…I have dementia, it doesn’t make me look poorly!

Will the way people see dementia ever change?

No!

Not while the advertisement and posters still depict an old person whom can’t remember!

Dementia is not all about memory!

When you get a diagnosis of dementia, you don’t automatically jump to the end stage.

Dementia has a start, a middle and an end.

Know one knows if dementia with be slow or quick to progress.

Now if I sat doing absolutely nothing, that is when I believe my dementia would start to deteriorate, as my brain would not have any stimulation.

I know people are inquisitive, most probably don’t mean to cause upset by the questions they ask.

This is where more education, more updated information is needed on early onset dementia.

Instead of all the out dated advertisement!

Maybe, just maybe, me and many others wouldn’t have to keep explaining ourselves.

The 4 Amigos ride again films are very real informative films, 4 people living with dementia, discussing different dementia topics.

From diagnosis, relationships to why we blog and go public with our diagnosis

All the short films/discussions can be found on YouTube