Monday 9th November 2026

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Have you had those conversations about end of life? Have you got your Lasting Power of Attorney for Health and Welfare in place?

It might all sound a little morbid, and perhaps not the sort of conversation we naturally want to have, but these discussions are so important. Death is a natural part of life, and something none of us can avoid. Yet so many of us put off making plans, perhaps because we don’t want to think about it, or simply because we believe there is plenty of time.

My advice? Don’t wait until it’s too late.

Don’t leave things until you are in the later stages of life, when family members are rushing around, desperately searching through paperwork and trying to piece together information about your wishes. Make those decisions now, while you can, and make sure the people closest to you know what you want.

You are never too young, and it’s never too early to start planning.

Once you have things in place, you can get on with living your life, knowing that your wishes have been documented and that the people around you understand them.

I’ve taken these steps myself. Everything I want or need to help ensure I receive comfortable and appropriate end-of-life care has been discussed and documented with my doctor and Admiral Nurses. I’ve also put together what I call my ‘death folder’, which contains important information and details about my wishes. My hubby knows exactly where it is, and my daughter has also been made aware of it.

Why have I done this? Quite simply, I don’t want my family having to scramble through piles of paperwork, trying to find the information they need at what will already be an incredibly difficult time. Nor do I want medical decisions being made without people understanding my wishes, or being given medication or treatments that I have previously said I do not want.

I want to have a say in my life, and I want my wishes respected right to the very end.

There is quite a lot to think about and organise, but some of these things really are worth getting sorted sooner rather than later.

Make sure you look into Lasting Power of Attorney (LPA) for both Property and Financial Affairs and Health and Welfare. These are two separate arrangements, and having them in place can make a huge difference if you are no longer able to make certain decisions for yourself. Some people qualify for a full exemption or a 50% reduction, depending on benefits and financial circumstances. I would Check with the GOV.UK website

https://www.gov.uk/power-of-attorney

There are also other things worth considering:

• Advance care planning: Put a care plan in place, documenting your wishes about future care, treatments and the things that matter to you. Think about where you would prefer to spend your final days, if circumstances allow.
• Advance Decision to Refuse Treatment (ADRT): This is sometimes called a living will. It allows you to record specific medical treatments you would not want to receive in certain circumstances if you were unable to make or communicate that decision yourself. It’s worth discussing this with your doctor so you understand exactly what it means.
• Review your wishes: Life changes, circumstances change and sometimes our feelings change too. Make a point of revisiting your plans and updating your paperwork when necessary. Make sure everyone who needs to know is aware of any changes.
• Important contacts and finances: Keep a record of your bank accounts, utility providers, insurance policies, pension details and other important contacts. It can make dealing with practical arrangements much easier for your family.
• Make your folder accessible: Keep your important documents somewhere safe but make sure the people who may need them know exactly where to find them. There’s little point having everything beautifully organised if nobody knows where it is!

And don’t forget to check whether you qualify for a reduction or exemption on the Power of Attorney registration fees. There are concessions available for some people, depending on their income and circumstances.

These might seem like simple things, but they can make an enormous difference to the people left behind. They can take away some of the uncertainty, reduce unnecessary stress and, most importantly, help ensure that your wishes are understood.

Living with young-onset Alzheimer’s has made me think about these things perhaps a little earlier than I might otherwise have done. I know how important it is to have a voice, to be listened to and to retain as much control over my life as possible.

I don’t see making these arrangements as being negative or giving up. Quite the opposite. For me, it’s about taking responsibility, making choices and giving my family some reassurance that they won’t be left wondering what I wanted.

So, please, don’t keep putting it off. Have those conversations, get the paperwork started and make sure the people you love know your wishes.

Because none of us knows when that date will arrive.

And once you’ve done it, you can put that folder away, get on with living and keep finding reasons to look forward.

It’s important. So what are you waiting for?

Friday 6th November 2026

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On Thursday 29th October 2026, hubby and I were interviewed by a journalist. Tom from DementiaUK had kindly arranged the call and was also on hand in the background, just in case anything needed a little clarification or support.

Earlier in the week, I had received some questions by email, so I sat down and made myself some notes to help me prepare. I thought I was well organised and ready for anything… or at least I thought I was! Hubby had to remind me I had made notes, the ones that were in front of me!

We chatted for a good hour, and there was plenty of laughter along the way as we talked about every aspect of how hubby and I live with my sidekick, early-onset Alzheimer’s.

I suppose talking so openly about dementia has become part of our everyday life. Nothing is really off limits between us anymore. Why should it be? Why hide things away, brush them under the carpet or pretend everything is fine when it isn’t?

Living with dementia affects so much more than people might realise, not just the person diagnosed but those closest to them too. There are challenges, frustrations and difficult days, but there is also laughter, love and plenty of life in between. I think it’s important that people hear about all of it, not just the bits that are easy to talk about.

We need to have these conversations. We need to talk honestly about dementia, the realities of living with it and the impact it has on families. The more we share our experiences, the more opportunities we create to educate others, challenge misconceptions and hopefully build a much wider understanding of a condition that is still so misunderstood.

I don’t know how the interview went from the journalist’s perspective, but I hope we managed to give her plenty of insight and that she was able to gather the information she needed to put together a good piece.

We will have the opportunity to read the article before it is published in a newspaper or magazine, so I’m looking forward to seeing how our conversation comes together.

As always, I’ll keep you posted and let you know where you can read it once it’s available.

One conversation at a time, one story at a time, hopefully we can continue to make a difference.

Wednesday 4th November 2026

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Most people know that I ran my own embroidery business until dementia came along and disrupted my world.

The machines I used were professional-grade commercial embroidery machines, with six needles and interchangeable embroidery areas, allowing me to embroider just about anything, from garments to caps…I loved what I did.

But the software I used to digitise designs and turn them into embroidery stitches gradually became too complicated for my brain to manage. I struggled to follow the process, and it was both frustrating and upsetting. Eventually, reality hit home, and I had to accept that it was time to let my business go.

I did keep one machine for a while. I suppose it was something to hold on to, a little piece of the business I had loved so much. But I hardly used it because the stress of trying to work with it, was just too much. Eventually, we sold it.

Just another thing dementia had taken away from me.

But was it really the end of embroidery for me?

6 Years Later

Over the last six months or so, I’ve found myself wondering whether I could try again. Technology has moved on, and I started reading about the newer, simpler embroidery machines and the changes in digitising software.

I began to ask myself two very big questions:

Could I do it?

Would I be able to understand it again?

Hubby and I talked about it. Would buying another machine be a waste of money, or could it give me something new to occupy my time, keep my brain active and, most importantly, bring me some enjoyment?

For months, I looked at different machines, talked myself out of buying one, and then spotted something else that made me want to have another go.

Then I spotted an embroidery machine in the sale!

Should I buy it?

Would it be a waste of money?

What if I couldn’t understand how to use it?

What if I got frustrated and gave up?

Oh my goodness, the number of questions I asked myself! It was almost as though I was trying to talk myself out of even trying.

But then I remembered something I often say:

If you never try, how will you ever know what you can do?

So, I took a deep breath and made the purchase!

I’ve spent the last couple of days having a good old mess about with my new machine. I’ve done things wrong, put things right, forgotten what I’d done previously and had to work things out again. I’m learning to digitise designs once more, and although retaining information can be a little tricky, I’m giving it a damn good go!

And do you know what? I’m enjoying embroidery again!

I might be slower than I used to be. I might need to repeat things, make notes and remind myself how to do something I managed perfectly well yesterday. I know there will be frustrating days, and I have no idea how far I’ll be able to take this.

Today, I’m doing it.

Today, I’m learning, creating and enjoying something I thought I had lost forever.

Tomorrow might be a different story, but that’s tomorrow.

Living with dementia means that sometimes I have to let go of things I can no longer manage in the way I once did. But perhaps it also means giving myself permission to discover new ways of doing the things I love.

I can’t turn back the clock, and I can’t change what dementia has taken away. But I can still have a go, learn something new and surprise myself along the way.

This isn’t about getting back the business I lost. It’s about finding enjoyment in something I love, on my own terms, with the brain I have today.

So here I am, back in front of an embroidery machine, taking one stitch at a time.

Who knows what tomorrow will bring? For now, I’m just happy to be doing something I love again.

And if there’s one thing I hope you take from my little adventure, it’s this:

Don’t be too quick to tell yourself you can’t. Sometimes, you just have to give yourself the chance to try.

Monday 2nd November 2026

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When it comes to finding ways to keep my brain functioning, I’ve tried all sorts of activities over the years. Some have faded away because my brain can no longer keep up, and others… well, I simply got fed up with them.

Dance, though, has always stayed with me.

As my sidekick progresses, one thing that seems to remain is music and movement. Put almost any song on and before I know it, I’m jigging along…Even when I’m wandering around the supermarket, I catch myself jigging between the aisles. The temptation to dance down those isles are very real…I just about manage to resist!

I’ve been trying to learn dance routines from YouTube, but when you have a sidekick that loves interfering with memory and concentration, it isn’t quite as easy as it looks. New routines are much harder to retain, and my attention often wanders before I’ve even learned the next step.

The funny thing is, my body has become another obstacle. In my head, I can do every move perfectly. Reality tells a different story! I’m not as supple as I used to be, my brain doesn’t process the steps as quickly, and I often spend more time catching my breath than actually dancing.

But despite the challenges, dance gives me so much. Repeating simple movements helps my body remember them, faster moves my mind struggles. Music lifts my mood, eases my anxiety, and for a little while I forget I’m exercising. It’s also wonderful for balance, coordination, strength and getting the heart working, even if I do end up bright red with a slightly purple tinge to my face!

Learning a routine is exhausting now, but on the days when I finally remember it, it feels like a little victory. A quiet reminder that my brain is still capable of learning, just in its own way.

I’m definitely not a dancer anymore, but that doesn’t matter. Learning to dance with dementia isn’t about mastering choreography, it’s about movement, laughter, and finding moments of joy.

Because sometimes the smallest steps bring the biggest rewards.

Friday 30th October 2026

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Whilst we were in Manchester to meet with the Coronation Street actors, we thought we would take the opportunity to spend some quality time together and visit a couple of places we had never been to before. The Lowry was one of them, and what a lovely surprise it turned out to be!

We were lucky enough to experience a 360-degree immersive show bringing the art of L.S. Lowry to life, and it was absolutely brilliant! At times, it felt a little strange, and I wasn’t quite sure whether that was my dementia or simply the experience itself, but whatever it was, I loved it.

It was a unique opportunity to immerse ourselves in the sights and sounds of Lowry’s iconic painting Going to the Match. The clever use of digital imagery and sound created layers of reality, making the painting come alive around us. It captured the excitement, anticipation and familiar rituals of going to a football match on a Saturday afternoon.

We could almost feel ourselves amongst the crowds as they made their way through the streets, past market stalls, with matchstick figures, cats and dogs all brought to life. It was a wonderful experience celebrating the everyday lives of working people in a northern town on match day. Just brilliant!

Afterwards, we took the time to listen to a talk about Lowry himself before wandering through the gallery and admiring the wonderful artwork on display.

We also learnt more about his artistic background. Although Lowry studied at Manchester Municipal College of Art under French Impressionist Adolphe Valette, he worked full-time as a rent collector and property clerk in Pendlebury, painting during the evenings and at weekends. He famously challenged the idea of being just a Sunday painter, saying, “I’m a Sunday painter who paints every day of the week!”

I must say, we were pleasantly surprised by just how much there was to see and learn, and we were so glad we had taken the time to visit The Lowry. It was certainly well worth it!

By then, we were ready for some lunch. We spotted a Nando’s, somewhere familiar, so Nando’s it was! Sometimes, when you’re out and about, familiar places can be just what you need.

Hubby works full-time, so we don’t often get the opportunity to spend quality time together during the week. It was lovely to have a day out, just the two of us, enjoying new experiences and making memories together.

With our bellies full, we headed off to our next stop, the Imperial War Museum North. What another incredible building, filled with history, stories and powerful reminders of the impact of war.

Once again, we immersed ourselves in a 360-degree experience, this time using surround sound and digital moving images and photographs projected onto the surrounding walls. It brought together different perspectives, reflecting not only on the immediate effects of war but also on what happens afterwards.

It was a poignant film that certainly made you stop and think. After the show, we spent some time looking at the memorabilia, taking a few photographs and reflecting on what we had seen before heading towards the café.

There, we were meeting Tom from Dementia UK, who would be accompanying us to meet with the Coronation Street stars to talk about their dementia storyline.

What a special day it had been! Two fascinating places, incredible experiences, history, art and time together, all before what was to be another very meaningful meeting.

No wonder I was shattered!

There was so much to see, so much to hear and so much for my brain to process. I absolutely loved the experiences, but living with dementia means that sometimes even the most wonderful days can leave me feeling completely exhausted. Taking in all those sights, sounds and new information is a lot for my brain to manage.

And now? I’m going to need the weekend for my brain to recuperate!

But you know what? It was worth every minute!

Wednesday 28th October 2026

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Oh, the bad head days! How I hate them. How they disrupt, disorientate and completely knock me off balance.

Having a few days away was wonderful, a chance to escape, enjoy nature and take a little break from everyday life. But sometimes, even the loveliest of weekends and then home to a full on few days always comes at a cost. The head from hell days!

The heaviness… oh, the heaviness! It’s like having a huge, dark cloud sitting inside my head that simply refuses to move. Everything feels harder. The confusion increases, and my sensitivity to noise goes through the roof. Even wearing my glasses to read feels heavy and annoyingly uncomfortable. At times, I feel nauseous, and no matter what I try, nothing seems to shift that bloody awful feeling.

It’s difficult to explain unless you’ve experienced it yourself. Imagine trying to think clearly when your head feels full of fog, every sound seems amplified, and even the simplest things take more effort than they should. You want to feel like yourself again, but you can’t simply switch it off. You have to ride it out and hope that, eventually, the cloud will begin to lift.

Trying to explain this to hubby isn’t always easy. He looks at me and asks, “You okay?”

I might just shrug my shoulders, because sometimes I haven’t got the energy to explain how I feel. Then comes the response, “Well, you don’t look it.”

And that’s the thing, isn’t it? I might look a little tired, vacant at times, but I’m not physically unwell. I can still talk, smile, walk around and try my best to function, even when my head feels anything but normal.

Sometimes I think hubby forgets that I have dementia and that a busy weekend, followed by a busy couple of days, no matter how wonderful they have been, can take its toll on me. I get tired of trying to explain how I feel. I get tired of repeating that I do have dementia, and that the effects of it aren’t always visible to the people around me.

I know it must be difficult for someone else to understand when they can’t physically see what is happening inside my head. There’s no plaster, bandage or obvious sign to show that I’m struggling. From the outside, I might look just the same as I did yesterday, but inside, everything can feel completely different.

Dementia is so much more than forgetting things. It can affect how I process information, how I cope with noise, how I manage my day and how much energy I have available. Sometimes, even the things I love doing can leave me needing time to recover.

I’m not someone who gives in easily. I keep trying, keep pushing myself and keep finding reasons to look forward. But I’m also learning that I can’t keep pushing through every difficult day as though nothing is wrong.

Sometimes, I need to stop.

I need peace and quiet. I need the noise to settle, the pressure to ease and the opportunity to let my head recover. I need time to recharge, without feeling that I have to explain myself or prove that I’m struggling.

And perhaps that’s something we all need to understand, whether we live with dementia or support someone who does. Just because someone looks okay doesn’t mean they are okay. A smile can hide a multitude of struggles, and being able to hold a conversation doesn’t mean everything is working as it should.

So, on those bad head days, I’m trying to remind myself that it’s okay to slow down. It’s okay to rest. It’s okay to give myself permission to do less.

I haven’t given up. I’m simply recognising that sometimes my head needs something that I can’t force it to give me.

A little peace, a little quiet, and a little time.

Because even a dementia rebel needs to recharge sometimes.

Monday 26th October 2026

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We do love Cumbria! Although there are some wonderful places to visit, we tend to feel more at home away from the main tourist spots like Windermere and Keswick, which can get very busy. Instead, we’re discovering the quieter places, such as Bassenthwaite, Greystoke, Millom and Kirkby Stephen. We’re still finding new places to explore, but one of our favourites has to be Augill Beck, near Kirkby Stephen.

The lodge retreat is peaceful, surrounded by nature, with only around 30 lodges in total. It has such a wonderful, tranquil atmosphere, making it the perfect place to escape for a few days.

This time, we booked a long weekend and, despite having visited before, we still managed to discover new walks and places to see.

When we go away, it’s also the perfect excuse to take plenty of photographs! Memories of dates, times and places become even more precious when your memory doesn’t always cooperate. My photographs help me remember where we’ve been and what we’ve seen, and they’re also incredibly useful when it comes to writing my blogs.

We arrived at around 2.30pm, and our routine is always the same. First, we unpack, put the kettle on, enjoy a cake and then have a wander around the surrounding area to see what we can discover. After that, it’s time for our evening meal and a little planning for the following day.

I’d spotted a nature reserve and viaduct online, not too far from where we were staying, with a relatively flat walk. So, on Saturday morning, after breakfast, we headed straight out to explore.

Smardale Gill Nature Reserve and Viaduct

Finding the place was an adventure in itself!

Our sat nav decided to take us down some random roads and almost delivered us into a farmyard, which certainly wasn’t the car park we were looking for! After taking another wrong turn we decided to ignore the sat nav, hubby eventually found the car park at Smardale Gill by the use of a map on his phone.

Finally, we were on our walk!

The pathways were lovely and flat, with good underfoot conditions, making it an enjoyable walk. Little birds flitted between the trees, and the dogs were in their element, enjoying the freedom and all the wonderful smells along the way.

We’d been walking for about half an hour when the viaduct finally came into view through the trees

What an impressive sight! Built in 1861, Smardale Gill Viaduct curves its way across the dramatic valley of Scandal Beck. The railway line closed in 1962, and in 1992 the viaduct was handed over to a trust, allowing it to become a permissive footpath.

Today, it’s a Grade II listed structure and has received a National Railway Heritage Award.

It’s a fabulous piece of engineering, and the surrounding views were simply spectacular. There was plenty to photograph, and we took our time enjoying the scenery.

Later that day, after a little refuelling, we headed to Brough Castle. Of course, plenty more photographs were taken! And what’s a visit to a new place without finding a local café for tea and cake? We certainly weren’t going to miss out on that.

A Sunday Morning

Sunday morning found me up and out early, hoping to spot some roe deer and rabbits. I was lucky enough to see plenty of both!

No red squirrels this time, unfortunately, although I did spot one grey squirrel spending time among the rabbits around our lodge. You never quite know what wildlife you’ll come across when you’re out and about, and that’s part of the pleasure of being surrounded by nature.

After breakfast, we took a short drive to the Eden Valley Railway.

The Eden Valley Railway Trust has restored a section of the railway line between Warcop and Appleby-in-Westmorland, so we just had to climb aboard and experience a little piece of railway history.

We travelled on an old train from the 1960s, carriage 61798, a preserved British Rail Class electric multiple unit driving motor brake second carriage, built at Eastleigh in 1961.

We tootled along the line, taking in the views and enjoying the experience. And I must say, the seats were far comfier than those on today’s trains!

Sometimes it’s lovely to slow down and enjoy something a little different. Not everything has to be about rushing from one attraction to another; sometimes the simplest experiences are the ones we enjoy the most.

After our train journey, we headed back to the lodge for lunch and a quick rest before setting off again, this time for a walk beside the river.

The dogs had a wonderful time splashing about in the water and enjoying a good run around. Watching them having so much fun is always a pleasure, and it’s lovely to see them enjoying the outdoors just as much as we do.

Time to Head Home

And just like that, our long weekend was coming to an end.

There was time for our evening meal, a little packing and one last chance to appreciate our surroundings before heading home.

We’ve been so lucky with the weather, and we’ve enjoyed some beautiful walks, discovered new places, spotted wildlife, taken lots of photographs and made more lovely memories together.

A peaceful few days surrounded by nature, with plenty of fresh air, history, cake and dog walks. What more could we ask for?

Sometimes a break away is just what we need to recharge our batteries, step away from our usual routines and remind ourselves how much pleasure there is in the simple things.

And as always, nature is free.

Friday 23rd October 2026

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Sometimes, it’s good to take a break for a few days, step away from the busyness of life, and simply breathe.

On Friday, 16th October, we immersed ourselves in nature once again. Nestled amongst the rolling hills of the Lake District is an idyllic park with luxury lodges and pods. We have had this weekend away booked for quite some time, and it couldn’t have come at a better moment.

After a busy few months filled with dementia meetings, radio interviews, speaking in Switzerland, and then navigating the complexities of the complaints procedure, only to have the complaint taken away in an instant due to circumstances beyond my control, I was ready to step back, let go of the stress, and just breathe again.

We have returned to Augill Beck, a beautiful place tucked away near Kirkby Stephen, and we absolutely love it here.

Waking up in the morning to roe deer wandering nearby, hoping to catch a glimpse of the red squirrels, listening to the birds, and hearing the soothing sound of the beck trickling past our lodge is just perfect. It’s the kind of place that allows you to slow down, relax, and begin to feel yourself again.

As we arrive, it feels like stepping into a different world. Almost immediately, I can breathe a little easier, and I can feel my body beginning to unwind. There is something about this place that helps me leave the outside world behind, even if just for a little while.

With the unpacking done, it’s time to have a wander around the area. Toby and Sooty are always keen to get out for a walk, especially with the scent of squirrels in the air! Their little legs can barely move fast enough as we follow the winding path towards the duck pond, surrounded by tall pine trees with squirrel feeding boxes nestled amongst them.

The dogs are kept firmly on their leads, of course. The last thing we want is for them to frighten the wildlife by darting off at speed!

The woodland smells wonderful, and as we walk, a roe deer suddenly stops and stares at us before darting away into the ferns and bracken. Little birds flit playfully between the bushes and trees, whilst the blue skies above lift my spirits.

It’s moments like these that remind me how precious the simple things in life can be.

Perhaps it’s the familiarity of returning somewhere we have stayed before, or perhaps it’s simply the peace and quiet. Whatever it is, Augill Beck has a special place in my heart. Here, I feel relaxed, comfortable, and at home.

For a little while, no emails to write. Just the fresh air, the beautiful surroundings, my hubby, and our two little Scottie Dogs, Toby and Sooty.

Sometimes, we all need to give ourselves permission to pause, especially when life has been emotionally exhausting.

And right now, this is exactly where I need to be.

Thursday 22nd October 2026

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If you’re a Corrie fan like me, you’ll know that the wonderful Sue Devaney (Debbie) and Vinta Morgan (Ronnie) have been bringing a dementia storyline to Coronation Street.

Personally, I think both actors are doing a wonderful job of bringing this storyline to life and helping to make it feel real. There have been a few moments when I’ve thought, “Ooh, that’s perhaps a little over the top!” But then we also have to take into account the personalities of the characters themselves.

Sue’s character, Debbie, is flamboyant, strong and very much larger than life. She’s a real live wire who wants to carry on as normally as possible, despite what is happening to her. Ronnie, on the other hand, is a gentleman who loves Debbie to bits and simply wants to do everything right by her. He wants to protect her, keep her safe and look after the woman he loves.

Mmm… I can certainly relate to parts of this storyline!

I’ve watched Coronation Street for as long as I can remember. It’s part of my daily routine, and if Corrie isn’t on television for some reason (usually because of the football!), my routine gets thrown completely out of sync. Yes, that’s my Alzheimer’s talking!

So, when Dementia UK approached me to ask if hubby, John, and I would be willing to speak with Sue and Vinta about dementia, my answer was an absolute YES!

There was just one little catch… I had to keep it a secret!

For weeks, I was sworn to secrecy. Can you imagine how difficult that was? I was absolutely bursting at the seams to tell someone, especially my family. Keeping such exciting news to myself was no easy task!

Yesterday Wednesday 21 October, hubby and I set off for Manchester. We decided to make a day of it, visiting The Lowry Arts and Entertainment Centre and the Imperial War Museum Manchester before meeting Tom from DementiaUK.

We met Tom in the museum café for a coffee and a chat, before setting off for the ITV studios at around 2 pm. We were going to meet Alison the Coronation Streets Publicist and Sue and Vinta the actors from Coronation Street.

I was so excited!

You have no idea what this meant to me. CORONATION STREET! Meeting the actors themselves and visiting the place where it’s actually filmed. For a Corrie fan, this was a real pinch-me moment!

We arrived, passed through security (our names were on the visitors’ list, thankfully ✔️), and were directed to reception.

Only, the reception area was the hospital!

Well, that completely threw me. I’m not particularly fond of hospitals, so walking into one wasn’t quite the welcome I had imagined!

We checked in and waited for Alison to arrive. There were lots of people passing through, including some very familiar faces and others working behind the scenes.

Then, a smiley face appeared. It was Alison, followed closely by Sue and Vinta.

Oh my goodness! Hold it together, Gail!

I do get a little overexcited sometimes, almost giddy with excitement. Meeting someone you’ve watched on television for years is such a surreal experience. You know they’re real people, of course, but there’s still that moment when you have to pinch yourself and think, “Is this really happening?”

And then things got even better!

We were lucky enough to have a tour of the Street and a peek behind the scenes. We watched filming, met other actors and had a look around the offices. It was fascinating to see what goes on beyond the familiar scenes we watch from the comfort of our sofas.

After our tour, we sat down together to talk about dementia and what life is really like for hubby and me, living with my sidekick, Alzheimer’s, in tow.

We talked openly about our experiences, how dementia affects our lives and what it means to live with the condition day in, day out. It was lovely to have the opportunity to share our perspective and hopefully help bring a little more understanding to the storyline.

We chatted and chatted, and before we knew it, it was around 5 pm!

I was absolutely exhausted, but in the best possible way. I think the excitement and adrenaline had carried me through the afternoon. Sometimes, when I’m caught up in something I love, I can almost forget about the difficulties Alzheimer’s brings. I’m simply living in the moment, enjoying what’s happening around me.

Of course, all good things must come to an end, and then came the less glamorous part of our day!

We had to wait for an Uber in the pouring rain. I was getting absolutely soaked, but do you know what? I didn’t really care!

The Uber took a while to arrive, and we only just made it back to the train station in time for our train. We literally had minutes to spare. Talk about cutting it fine!

The train was packed, too. Normally, a crowded train and all that hustle and bustle might have left me feeling overwhelmed, but not this time. I was still riding high on the excitement of the day and another wonderful experience that Dementia UK had helped make possible.

As I sit here writing this blog, I still can’t quite believe it all happened. I feel incredibly lucky and grateful for the opportunities that have come my way, and especially for the chance to share my experiences of living with dementia with people who can help bring those stories into our living rooms.

For me, it’s about so much more than meeting the actors from a programme I’ve loved for years. It’s about having a voice, being listened to and helping people understand that dementia is not the whole of who we are.

Behind every diagnosis is a person, a family and a life that continues to be lived. We still have personalities, feelings, hopes, dreams and plenty of laughter along the way.

And if sharing a little of my life with Sue and Vinta helps someone watching Corrie understand dementia a little better, then that makes the whole experience even more special.

So, from sitting on my sofa watching the familiar faces on the cobbles to actually standing there behind the scenes, talking about my own experiences of dementia, what an incredible day it has been!

Thank you, Dementia UK, for making it possible, and thank you to Alison, Sue and Vinta for such a lovely experience.

Now, I wonder what Corrie has in store for Debbie next… I’ll certainly be watching! Will You?

https://www.dementiauk.org/information-and-support/how-we-can-support-you/admiral-nurse-dementia-helpline/

Wednesday 21st October 2026

If you would rather listen to my blog than read, you can click the link below

When dementia enters a family, there are plenty of conversations about memory, medication, appointments, the scans, the diagnosis, lasting power of attorney and what the future might hold.

But there are other conversations that often remain behind closed doors.

Incontinence.

Changes in intimacy and sex.

Changes in relationships.

Embarrassment.

The loss of confidence.

The impact on a husband, wife or partner.

These are not easy subjects to talk about. They can make us feel awkward, vulnerable or even ashamed. Yet pretending they don’t exist doesn’t make them disappear.

Intimacy may change after a diagnosis of dementia. As I often say, not everyone’s dementia is the same, and the same is true when it comes to intimacy. Some people may want more closeness, while others may not want to connect at all. They may pull away, but that doesn’t mean they don’t love you; it may simply be that they have lost interest in intimacy or sexual contact because of the changes dementia has brought. Affection may shift from sexual intimacy to simply needing comfort through holding hands, cuddling, or hugging.

These changes are rarely spoken about, yet they can be deeply painful and upsetting for a wife, husband, or partner to adapt to and accept, especially if they have always shared a close and fulfilling intimate relationship.

Incontinence is another subject that brushed under the carpet, no one wants to face and accept. It’s something many people feel embarrassed to talk about, which often means they don’t seek help or find solutions that could make life much easier. There are incontinence pants and pads that can help people continue living their lives with confidence.

I wear them when I need to, and I’m not embarrassed to admit it. In fact, I can tell you this: it’s far more upsetting to wet yourself in public than it is to wear something that gives you dignity, confidence and peace of mind.

Living with dementia affects far more than memory. It can change how we see ourselves, how we relate to those we love and how our bodies work. Families often find themselves facing situations they never imagined, yet many of us don’t know who to ask…Why?…Because nobody seems to be comfortable talking about them.

Perhaps it’s time we changed that.

By speaking honestly, we don’t take away anyone’s dignity, we protect it. We replace embarrassment with understanding.

Dementia isn’t just about forgetting. It’s about navigating every part of life, including the parts that society often whispers about or avoids altogether.

The more openly we talk, the less alone people will feel.