Monday 12th October 2026
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Living with dementia, routine can be really important to me. It gives my brain something familiar to hold on to and helps me know what I’m doing and where I’m supposed to be. So when that routine is broken for a few days, it can take me a while to pick it back up again.
Coming home from our three days in Switzerland, I found myself feeling quite strange. I was tired, both physically and mentally, but I was also still on a high from such an exciting and positive experience. My head was full of everything that had happened, the people I had met, the conversations I had had and the opportunity to share my story. It had been amazing, but it was also a lot for my brain to process.
And then I came home to a very busy week.

There was visiting my dad, which is always emotional at the moment, especially with everything that has happened around his care. Then came two days of back-to-back meetings, a radio interview and, in between all of that, I was still chasing complaints and trying to get answers about the lack of care my dad received in the care home.
It felt like my brain barely had time to catch up with one thing before something else was happening.
I found myself feeling lost and unable to function properly. Simple things seemed harder than they normally would. I knew what I wanted to do, but somehow getting my brain to organise it all felt like a completely different matter.
I think I have been chasing myself coming backwards this week, if that’s even the right saying!
There is also something strange about coming down from such a big experience. Switzerland was exciting, exhausting and emotional, and I came home feeling proud and happy about what I had achieved. Then suddenly I was back in everyday life, with appointments, responsibilities, my dad and all the things that still need sorting.
Sometimes I think people see the exciting things I get involved in and perhaps imagine that because I manage to do them, everything is easy for me.
Well I can tell you It isn’t.
I can do amazing things. I can travel, speak about dementia, sit in meetings, do radio interviews and share my story. But that doesn’t mean my brain doesn’t pay the price afterwards.
Sometimes I need time to recover.
Sometimes I need quiet.
And sometimes I simply need to get back to the things that make my world feel familiar again.
So, if I’m honest, I’m rather glad that week is over.
This week is going to be a quieter one. I need to slow everything down, get back to my usual routine, spend some time outdoors, walk with the dogs and give my brain a chance to settle. Hopefully, little by little, I’ll start feeling a bit more like myself again.
Because at the moment, I feel like I’ve been stuck on a constant spin cycle, round and round, trying to keep up with everything, while my brain is desperately looking for the stop button!

Living with dementia means I’ve had to learn to listen to my brain more. I’m still learning, actually.
I’m learning that after the highs, there can be a bit of a wobble. I’m learning that needing time to reset isn’t failure. And I’m learning that sometimes the best thing I can do is stop trying to do everything and simply give myself permission to breathe.
So this week, I’m pressing pause.

Back to routine.
Back to familiar things.
Back to a slower pace.
And hopefully, back to feeling a little more human again.













































