Wednesday 15th May 2024
Do people living with dementia actually have a voice?
Maybe not according to the Alzheimer’s Society!
Last week I received an email regarding the outcome of the petition Maxine Linnell started “ Stop negative and inaccurate dementia publicity. Show the hopeful, creative possibilities”
When I last saw the petition the signatures raised, was somewhere around 1660. Obviously there was a very high percentage of people that opposed this horrendous advertisement. Me included.
For me the advertisement brought feelings of anger, great disappointment and sadness, but most of all the feeling of being ignored!
Yet again the voices of people living with dementia just being brushed aside, it’s as if our comments and feelings are quashed!
The advertisement has deeply affected me in more ways than one. I can not believe such a large organisation whom claim to support people living with dementia could stoop so low, to make dementia so frightening and horrifying. Portraying that dementia is such a negative place to be in!
As for the petition.
The Alzheimer’s Society turned away every single signature! They have turned their back on the thousands of people that are trying to change the stigma and perception of Dementia
PETITION DECLINED! by the Alzheimer’s Society
You can read the update on the petition by clicking the link below
So many people living with and without dementia, campaign tirelessly everyday to create a better world for those of us living with the disease, yet the Alzheimer’s Society have turned their backs on the people that matter…
The people that need positive support!
The people that are living with dementia!
Dementia is not all about carers!
It is about supporting the person living with the disease!
According to the Alzheimer’s Society, I died the day I received my diagnosis and continue to die again, again and again!
Maybe that’s why I have never received any support from them!
Excuse me! Alzheimer’s Society! I live with dementia and I am very much alive!
So saying people with dementia die again and again and again, is definitely false advertising!
What worries me is if the biggest Alzheimer’s Charity speaks so negatively about Dementia, what hope have we got to change people’s perspectives of this disease
It’s no wonder we are still banging heads!
I sometimes wonder if there is any point!
Then I realise…Yes there is a point!
We need to stand up to negative organisation, otherwise they have won!
Changes need to be made!!
There is a life after a dementia diagnosis, I’m living proof and so are many others!
If you would only listen to the experts!
THE PEOPLE LIVING WITH DEMENTIA!
MAKE A CHANGE!
SEE THE POSITIVES IN DEMENTIA!